Monday, Monday

Monday, Monday

I woke up today and realized I couldn’t move my legs. I waited for a while before I got out of bed and hobbled over to take my medicine. Usually within a half hour all of the burning in my legs has subsided, but this morning it was a no go. I realized when I was pulling multiple bottles of pills out of my strongbox, that I couldn’t see the labels very well, and my head felt funny. It feels like my brain is swelling up and I have a new itchy rash all over my body. Chuck called my rheumy who said it didn’t sound connected to what he was treating me for, so I should call my PCP. How can swelling in your head and a rash not go hand in hand with autoimmunity? It could be CNS involvement. So I did what any sane woman would do, I cried. I am in between PCP’s and will be seeing a new one tomorrow for a physical. I decided that I wasn’t going to die and we’ll see what she says tomorrow. Have you ever felt completely abandoned by your medical professionals in times of crisis?

One thought on “Monday, Monday

  1. Yes, I have and know how frustrating it can be. Mine was with a dr that was filling in for my regular dr who was on maternity leave. She misdiagnosed me so bad I thought I was going to die. One day I called for an appointment and was given the dr who was on call there that day. She was wonderful and sent me on the right road with the right diagnoses.

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