Browsed by
Month: February 2008

Just gettin my ad on…

Just gettin my ad on…

Hey all! It’s been a few days since I’ve been online. You wanna hear my laundry list of reasons?? First I wanna talk about the ads on my site. (my brother is probably reading this and rolling his eyes) I decided to put some ads on here to try and generate some change as in nickels and dimes change, not changing the world change. But- I had a big problem with the idea of me not getting to pick and choose the ads…hurumph.

Anything I type here will generate ads by content. Since I do write about Lupus, RA, and autoimmune issues there will be lots of ads pertaining to those issues. I have a HUGE problem with any company touting a cure. There is no such thing yet. That’s part of my reason for starting this blog was to raise awareness and get people talking. That and an outlet for me to do the talking too. 🙂 I’m a big advocate for the Lupus Foundation and the Arthritis Foundation; participating in fund raisers and writing my government peeps when I need to.

To sum this post up in a nutshell, if you see an ad that is promising a cure; I do not endorse that whatsoever. There will be ads for reputable sites and good information, it’s your call.

I am so tempted to type in poop (i just did) and see what comes up on the right side of the page…

Until next time

Michelle

I won, I won!

I won, I won!

The other night I gathered up all of our bills and stacks of junk mail. I always say I’m going to go through the mail each day and toss out all the junk so I don’t have a mondo pile to go through all at once, but I never do. So, I’m going through the giant pile and I see an envelope addressed to me that looks like junk. I open it and I see a photo that I took a while back along with a bunch of forms. Confusion sets in. So I read on and the letter states that I entered a photo contest and mine was chosen to go into the book that they are making. Slowly I remember entering this contest months ago and waffling between two photos, unsure of which one I liked better.

Here’s what they had to say to me “Michelle, your photograph was selected for publication because of it’s unique perspective and your artistic vision”. Wee hooo!!!

I realize that this is a form letter sent to each person who was chosen to be in the book, but I don’t care. Unique perspective and artistic vision…ahhh. OK, I’m done being humble. 🙂 The thing is, since I am so lazy when it comes to going through the mail, the date on it was early January. And it said if I wanted to be included in the book and be published to sign and send back immediately. Oh well, we’ll see if it makes it there before press time.

Here’s the shot

snail

The Long Trek Up Copyright By Arimayasheart.com

Did he say DIE????

Did he say DIE????

Why, yes he did folks…. I’ve had a busy few days with doctor appointments and sleeping off this cold/flu bug. OK, the title of this post refers to my visit with my chronic pain management doc. He has always said some really random and un-pc things, but this one caught me by surprise. He even slipped in a really tacky reference to Heath Ledger. Here’s how it went…

ME: Yes, I can tell the fentanyl is doing something, I still feel the burn in my legs but it feels muffled. ( I know, I don’t explain things very well)

DOC: OK, well the patch you have on now is a starter dose. So we’ll go up to 50mcg/hr. But I want you to know, YOU COULD DIE.

ME: silent stare, speechless

DOC: Right, so, for the first day or so you should have someone watching you.

ME: Did you say die?

DOC: Right.

ME: Okayy, um, that’s scary. So how should I take my pills then, should I cut down to 1 instead of 3 in the morning so I WON’T DIE.

DOC: No, no, you don’t want to do that. You would probably go into withdrawal.

ME: sigh.

DOC: Alrighty then. (As he’s getting up and walking out the door with me behind him) You’re on a pretty mighty cocktail. We don’t want another Heath Ledger on our hands. (Medical Assistants all look up at me) See you in a month!

I left the office scared to death of my new patch and my impending doom, and also feeling like a drug abuser. Mighty cocktail… not my fault I am in pain 24/7. And he is the one who prescribes the mighty cocktail. It’s not like I even want to take any of this. I would prefer to rewind 2 years and have my old life back…no pain, no illness, no references to Heath Ledger.

LFA’s Walk for Lupus Now

LFA’s Walk for Lupus Now

I was reading the news at the Lupus Foundation’s website and saw an article for the upcoming Lupus Walk 08. Check out the link, if you can make it, it is so worth it!!

Lupus Walk 07

I’m still here…

I’m still here…

I haven’t posted in a couple of days. I’ve been flaring really hard and sleeping alot. A good friend of mine gave me some some really good advice, “sleep without guilt”. After these last couple of days I think I have mastered that pretty well.

Before I mastered the guiltless sleeping, I would lay down and my mind would roll on and on about all the things that need to get done. Or I would feel like I should be doing something… Why is it that when we are sick we feel guilty about it? After 2 years of living with this disease I still haven’t gotten used to the idea that I am not the same person physically. Little things like getting up and jumping into the shower are no small feat for me. I have to sit up and get my bearings, take my medicine and wait for it to kick in.  What used to be a 20 minute process is now a 2 hour chore.  It pisses me off.  I don’t ask myself why anymore, I’ll never know why I got sick.  I’m still trying to figure out how to live my days without anger.

OK, no more negativity, next post will be happy happy sunshine till you wanna barf.

Drugs; can’t live with em, can’t live without em

Drugs; can’t live with em, can’t live without em

Before I became ill I was a tylenol girl.  I wouldn’t take anything but tylenol.  For everything.  If a doc wanted to prescribe me a pain killer I always turned it down saying “I don’t take anything but tylenol”.  Boy those days are long gone…

I now have to take so many different medications to help prevent my body from attacking itself and also for the pain because the prevention drugs aren’t the ‘cure’.  I still hurt.  Anyways, recently my doc prescribed the fentanyl patch.  You put it on and change it every 3 days.  It has helped me to some degree.  What scared me the most is that I am taking multiple pain meds and I still feel the pain.  What if I didn’t have these medications?  Could I survive the pain?  It scares me to think about it.  I got off track…my brother sent me an email about a recall for the fentanyl patch.  Here is the link to the story.  If you are taking fentanyl, please read this story and check the manufacturer on your prescription.

sick…

sick…

I can’t believe I caught the bug. My granddaughter got sick 2 days ago and her fever finally spiked and fell last night. I woke up this morning and whammo. Body aches, head ache, uggghhhhh!!!! I vow to stay in bed today and take care of myself…with my laptop. I’m such a nerd.

New Lupus Foundation Message Boards!!

New Lupus Foundation Message Boards!!

I’ve said it before I’m all about social networking.  When I got the email announcement from the LFA group from Facebook talking about the new message boards I thought, “yay!!!”.  If it hadn’t been for a Lupus message board on yahoo, I wouldn’t have met some wonderful people that I am so grateful to have in my life right now 🙂  I also wouldn’t have learned from some ‘veterans’ on the board how to keep good medical records, how to be my own champion when it comes to insisting on my full 15 minutes with the docs (if your doc won’t listen to you, leave em) and the importance of having a good packet made up for ER visits.  If you can’t speak for yourself during an emergency it’s good to have a file of the meds you are taking, the conditions you have, your rheumatologists number, etc.  Anyway, I’ve just signed up for the new message boards and if you wanna check it out the link is here.

the results are in…

the results are in…

Well, I got the results back from my MRI and there are no lesions!!!! That means no MS. I talked to my neuro’s nurse who had me up the dose on my Lyrica, and they are setting up a referral for me to get a punch biopsy done to check for small fiber neuropathy.

I’m still here..

I’m still here..

I haven’t posted in a while, again.  I have been flaring really hard, and I don’t want to whine about it.  Yes, I realize that this is my blog and I can whine if I want to.  I’ve just been very un-bloggy lately.  More on this half-hearted update after my meds kick in…

%d bloggers like this: