Drugs; can’t live with em, can’t live without em

Drugs; can’t live with em, can’t live without em

Before I became ill I was a tylenol girl.  I wouldn’t take anything but tylenol.  For everything.  If a doc wanted to prescribe me a pain killer I always turned it down saying “I don’t take anything but tylenol”.  Boy those days are long gone…

I now have to take so many different medications to help prevent my body from attacking itself and also for the pain because the prevention drugs aren’t the ‘cure’.  I still hurt.  Anyways, recently my doc prescribed the fentanyl patch.  You put it on and change it every 3 days.  It has helped me to some degree.  What scared me the most is that I am taking multiple pain meds and I still feel the pain.  What if I didn’t have these medications?  Could I survive the pain?  It scares me to think about it.  I got off track…my brother sent me an email about a recall for the fentanyl patch.  Here is the link to the story.  If you are taking fentanyl, please read this story and check the manufacturer on your prescription.

4 thoughts on “Drugs; can’t live with em, can’t live without em

  1. Elana,
    I have not tried it, yet. In going through this with your son, I’m sure you know how frustrating it can be to tell the docs what you want only to have them say, “well, let’s try this first”.
    I am so happy that he is symptom free!!! Congrats on the marathon, and prayers for continued remission for him 🙂
    Thank you for the good wishes, and I hope you stop by again soon:)
    Blessings,
    Michelle

  2. RubyShooZTwo,
    Thanks for stopping by to comment 🙂 I’m sorry that you do understand about daily pain, it’s not something I would wish on anyone. I am in a chronic pain management program. So far it’s been trial and error. I go back on Monday to for the first time since being on fentanyl, so we will talk about how it’s been going and go from there.
    I’m wishing you some peace today also 🙂
    Michelle

  3. Another first timer. Found your blog from BlogHer — I haven’t read your entire blog but curious if your doctor ever recommended Embrel? When my son –who is now 24 and symptom free— was a teenager he was diagnosed with juvenile dermatomyostis.

    He did not respond to any of the conventional treatments and went through a series of experimental treatments until the doctor recommended Embrel. At the time Embrel was a very new medication , extremely expensive and hard to get. I can only say that his major symptoms disappeared within 3 weeks — it absolutely gave him his life back.

    Fortuneatly for him, Juvenile dermatomyositis can be a one episode occurence and for the past four years he has been off of all medicines and seems to be symptom free.

    Having watched my son suffer with dermatomyositis, watched his muscles atrophy and just basically loose strength,not to mention the complications of the calcifcifications, I am a huge advocate of Embrel.

    I know it doesn’t work for everyone but it really was amazing. Oh, and my son just completed his first marathon this October.

    Best wishes for a return to good health,

    elana

  4. Hi, first timer here.

    I was prescribed the fentanyl patch as well but I only weighed about 95 pounds and they said it wasn’t working because I didn’t have enough body fat to absorb it so I was prescribed some other things. At this point I have been taking quite a few meds but I am still having pain too.

    I can identify with your fear about the pain. It’s something I’ve been living with for a long time now so I’ve gotten quite used to it but it isn’t a good thing for sure. I’ve had to practice much acceptance about it but hopefully working with the new doctors I have at the pain management clinic will be more helpful than the bs I was getting from my old doctor.

    Are you involved with a pain management clinic?

    Wishing you peace today.

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