I had a feeling that this would happen. I’ve experienced it far too many times these past couple of years. When a doc doesn’t know what to do, they throw in the towel. My husband called the rheumy’s office for the blood test results and was told by the nurse that the lab missed running the sed rate but all the other numbers looked OK. So my doc didn’t think it was autoimmune related. That’s it. period. I feel very abandoned, I don’t know where to turn now. They didn’t even want to run the sed rate again, I felt very much like he thinks I’m being a whiner, or worse than that a malingerer. I don’t know what’s happening to my body, and before getting sick I didn’t have any problems so of course I think it’s autoimmune related. Suffice it to say, yesterday I had the blues big time.
I find out today the lab results from the neuro’s office. sigh. Maybe he can help me, I just don’t know. I’m still waiting for the referral to go through for the punch biopsy he wanted to have done at the hospital up north…maybe my muscles are related to the small fiber neuropathy.
When I started this blog, I wanted it to be a forum for other people who were going though some of the same issues I am and to share some knowledge that I’ve acquired. I need to focus on that for now, I certainly didn’t want this site to be a TOTAL whinefest from me, I’m just really scared right now. I can’t control my muscles, and not only is it painful, it is very scary.
I need to start thinking positively and try and figure out my next step in this. We learned very early on that we have to be our own champions, I need to figure out where to turn for help now.
If anyone has had any similar episodes with their muscles, I would love to hear from you!
Now, I am going to focus on flipping this back into the blog that I wanted it to be 🙂 I’d like to do a review on one site a week of the places that I’ve found to be very helpful, supportive, and informative. So that’s my mission for today!! Positivity and some research.
Until next time…