What’s up

What’s up

I’ve been meaning to post here for the past 2 days, but I have been flaring like crazy.  It’s 1:30 in the morning here and it’s the first time in the past 48 hours that I feel almost normal.  I know that there are so many people who have different autoimmune diseases, and other diseases for that matter, and I don’t know how people do it.  How do you get up in the morning and get ready and go about your day?  I want that back in the most desperate way.  I do realize that this is depression talking, and that things WILL get better, but for now I just can’t see the light at the end of the tunnel.  I still have a month left before I see the neuromuscular doc for my biopsy results.  Has anyone had to wait 2 months for results???  So for now, I just keep taking 2700mg of neurontin a day that does absolutely nothing and wait.

OK, enough with the negative venting!  The Big C and I were talking about getting back into shape.  I’m limited in what I can do in the way of excercise, and neither one of us ‘likes’ to work out…So, we have a WII.  And the kids are always playing games on it, but if we could steal some time on it we want to try out WII fit.  I was reading my fav blogs today and came across this post from Marijke from Help My Hurt and I had to laugh. Check out her blog, she has some really great information for anyone with chronic pain.

And that brings me to National Invisible Chronic Illness Awareness Week.  I wanted to write about this on Monday, see above, lol.  My bloggin friend Connie will be speaking this week and I sure hope I didn’t miss it.  But if I did, I heard that it will all be archived, so that is cool.  I will be checking it out tomorrow, God willing, I WILL NOT BE FLARING SO HARD!!!  There.  That will work I’m sure.  There was something else I wanted to write but my head is full of mush so I’m signing out.  Peace.

(snail) image: FreeDigitalPhotos.net

One thought on “What’s up

  1. Hi Michelle, do not feel alone. My doctor would send me for test that I thought would save my life and then schedule an appointment to review the test two or three months later. It is crazy.

    Are you only taking neurontin for pain? I take that and four other medications for pain. I still suffer with chronic pain.

    I was not able to participate in much of the festivities last week either. I was able to visit some of the blogs and leave comments. I was so sick that I could not sit in my computer chair long enough to listen to the “blog talk radio” programs. This week seems to be starting out much better.

    September is “Pain Awareness Month”. Therefore, you can still blog with others who are suffering with chronic pain at the “American Pain Foundation” site.

    I hope you are feeling better.

    Be well

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