*2009 Advocacy and Kids’ Summit (and stipends to go!)*

*2009 Advocacy and Kids’ Summit (and stipends to go!)*

Did you know that over 46 million adults have arthritis and over 300,000 kids do as well? You have a chance to tell Congress that more needs to be done, at the 2009 Advocacy and Kids’ Summit!

At the Summit you will meet personally with your Members of Congress, or their staff, and will have the chance to tell your story.  How has it affected you?  Your family?  What is day to day life like for you?  Anything you would like to say about living with JRA, RA, osteoarthritis, or if you suffer from one of the more than hundred other forms of arthritis?  Now’s your chance!

Advocates will learn how to best communicate with their elected officials, attend a training workshop to improve their advocacy skills, meet with other advocates and network, and more.

Look forward to getting together with not just Members of Congress, (which is huge btw) but also people just like you and me; people who have arthritis and can relate to all of the trials and tribulations.  It’s not just a matter of pain, even chronic debilitating pain… but money issues, health insurance or lack thereof, medicines, stress on family life, marriage, etc.  We all need to know we are not alone, and boy, we sure aren’t with numbers like those above.

Register now for the 2009 Advocacy and Kids’ Summit, Capitol Hill, Washington D.C., March 2-4, 2009.  For more information please click this link here.

Here’s some good news- The Arthritis Foundation Public Policy and Advocacy Department is offering stipends to attend.  Stipends are limited to $1000 for an individual to $1200 for a family.  Application deadline is Monday January 12, 2009.

I’m going to list the congressional districts or states eligible for the stipends. If you are eligible and would like a copy of the application please contact the Public Policy and Advocacy Department at advocacy@arthritis.org or 202-887-1700

Congressional Districts or States Eligible
1.    Richard Shelby, AL
2.    Lisa Murkowski, AK
3.    John B. Shadegg, AZ 3rd
4.    Mike Ross, AR 4th
5.    Nancy Pelosi, CA 8th
6.    Barbara Lee, CA 9th
7.    Anna Eshoo, CA 14th
8.    Michael Honda, CA 15th
9.    Lois Capps, CA 23rd
10.    Henry A. Waxman, CA 30th
11.    Hilda L. Solis, CA 32nd
12.    Lucille Roybal- Allard, CA 34th
13.    Diana DeGette, CO 1st
14.    Rosa L. DeLauro, CT 3rd
15.    C.W. Young, FL 10th
16.    Nathan Deal, GA 9th
17.    Daniel Inouye, HI
18.    Mike Simpson, ID 2nd
19.    Jesse L. Jackson, Jr., IL 2nd
20.    Jan Schakowski, IL 9th
21.    Steve Buyer, IN 4th
22.    Tom Harkin, IA
23.    Pat Roberts, KS
24.    Edward Markey, MA 7th
25.    Mike Rogers, MI 8th
26.    Betty McCollum, MN 4th
27.    Dennis R. Rehberg, MT
28.    Dina Titus, NV 3rd
29.    Judd Gregg NH
30.    Frank Pallone, NJ 6th
31.    Jeff Bingaman, NM
32.    Nita M. Lowey, NY 18th
33.    Sue Myrick, NC 9th
34.    Tim Ryan, OH 17th
35.    John Sullivan, OK 1st
36.    John Murtha, PA 12th
37.    Joseph R. Pitts, PA 16th
38.    Tim Murphy, PA 18th
39.    Patrick J. Kennedy, RI 1st
40.    Bart Gordon, TN 6th
41.    Marsha Blackburn, TN 7th
42.    Joe Barton, TX 6th
43.    Michael C. Burgess, TX 26th
44.    Gene Green, TX 29th
45.    Jim Matheson, UT 2nd
46.    Bernard Sanders, VT
47.    Jay Inslee, WA 1st

* * cross posted at Wellsphere.com, right here 🙂

I would do just about anything to be able to go to this summit.  Not only can we not afford it, my health has been so bad these last 3 months, I wonder what the future holds for me.  I WANT to be well, I am doing my positive thinking, taking all of my meds, saying all of my prayers, and waiting.  Some days are good, but most are not and I’m really really trying to see the sunny side of life right now.  We have to pick up prescriptions tomorrow and they are going to set us back $1000.  Each month that’s what we pay for my meds.  If any of you go, please contact me when you get back and tell me all about it!!  I’m posting the video that the Arthritis Foundation has put out from last year’s summit.

Until next time

Talk to me! :)

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