Life in the Autoimmune Lane

move over, I wanna change lanes!
August 22nd, 2011 by Michelle

going backwards in time

Day 275/365: The Stand
Image by ~jjjohn~ via Flickr

I was going to write a post and as i was going through my

blog I came across this one from 2 years ago and it is

exactly what i was going to say.  I feel like I’m on a treadmill

that’s going backwards.

It’s safe to say I can’t stand depression. I mean who does? It sucks, sucks, sucks. I know that it is a chemical tweak in my head, I know that things are better than they seem, I know that I won’t feel like this forever, but even with all that knowledge-it doesn’t hurt any less.

I have people who depend on me. How extremely selfish of me to focus so much on me. I need to pull up my bootstraps, as they say. Or something like that…

How do people do it, I want to know. It’s been months, and I do mean months of joints pain, muscles that won’t relax, muscle pain/burning and weakness, rashes all over my body, feeling like there is sludge or lead in my veins, so heavy, heavy how am I going to make it through the day again? I ask God to help me. Please help me. And He does, sometimes. Other times I’m guessing it’s something I need to figure out on my own.

Sometimes I feel like screaming at everyone around me (that would be family, who always has my back) YOU TRY AND DO THIS FOR 3 FUCKING YEARS WITH VERY LITTLE ‘DOWN TIME’ AND SEE HOW ‘NORMAL’ OR ‘YOURSELF’ YOU SEEM. IT’S SO HARD TO BE IN PAIN/FATIGUE/SICK FEELING LIKE POISON OR SLUDGE RUNNING THROUGH YOUR VEINS/COMA SLEEPING/BURNING AND SO ON AND SO ON… I know it’s hard on them too though. It must suck to live with someone who is constantly in some form of pain or sickness. It has to be tiring, and not very fun giving giving giving. I hear this a lot “oh wait, why am I complaining to you when look at all you have to go through”. No. I WANT people to be able to vent to me. I want my husband to tell me all about his shitty day and not feel guilty about doing it. But if you see the bold print above, I must be throwing mixed messages out with my body language and mood. I suck. I haven’t ever said those words, it’s just pops up in my selfish little mind sometimes. Wow, typing this out is cheaper than therapy! Good thing, because the medical bills have drained us, we are broke.

The Big C tells me that it won’t always be this way and I wish I could believe him. I tell him “I know” and give him a hug because he needs to hold on to that and believe it so he can keep on going. This disease has really hurt the man that I love. He can’t stand to see me when I’m writhing in pain and there’s nothing he can do to help me. At least, that’s what he thinks. Just being there and holding my hand is helping me, I tell him that. But he wants to ‘fix it’. It drives him crazy. If the shoe were on the other foot, I would feel the same way. Helpless. It tears him up and it hurts to see him that way. Then I feel guilty. When I think about it, this illness affects us in so many different ways, and offshoots of ways, a lot more complex than I thought.

My body has done some pretty awful and unbelievably painful things to me and each time I would think, it couldn’t get any worse, I have never felt such awful pain, suicide pain is how I heard someone describe it and that hits the nail right on the head. When your body is in pain in multiple places for extended periods of time, the kind of pain that’s a 10 on the pain scale, you’re in the hospital and they are slamming your IV with morphine or fentanyl or demerol because your blood pressure is through the roof due to pain, and even though you’re floating with so much narcotics running through your veins, there it is. You can still feel it. It’s like it’s a mocking you-I’m here to stay. That’s suicide pain. How do you stay positive??? How do you get up in the morning and hide the pain face from your kids?? How do you stay happy??? I try so hard, but I’m in a place now where I’m failing. I’ve been there in that moment so many times, I NEVER would have guessed that my life would be like this. I just really want/need one of those days where I wake up and feel like the old Chelle. It’s amazing how much that gives to me just having a day, or even a few hours of feeling normal, it keeps me going for weeks. Then I think, I WILL go into remission. And, sometimes I just need to be reminded what normal feels like so that I can start being positive and work towards that.

The Bean is eating her cereal, late, and she is smiling and singing Twinkle Twinkle, in her own way which is totally amazing. Everything falls back into place now. She is my reason. For everything. Tomorrow will be a better day.

Special thanks to JJohn @ Flickr for the most beautiful flowers

Comments

2 Responses to “going backwards in time”
  1. Hey!! Been a while =) first of all, thank you for doing a spotlight on me! secondly, ugh. LOL. I have been so NEGATIVE here and then nonexistent… still figure some things out.
    How have you been? I am WAY over due for doing my blog rounds. I really hope you are well xoxo

  2. Chronic Chick Talk says

    Hi Girl,
    I’m doing a spotlight on you this week on Tuesday.

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