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Month: April 2013

Just Checkin In…

Just Checkin In…

Hey all. It’s been a strange week, sad, emotional. Leaves me feeling grateful which makes me feel guilty. Lots of feelings going on. It’s Friday at about 10 to 6 in the evening and I’ve cut myself off from the news for a bit. My mind was going on overdrive and the feeling in my heart were overwhelming so I gave myself permission to tune out. 

Right now Bean’s taking a nap. She does every Friday after school so she has the energy to stay up a little late with her sister. 🙂 I think it qualifies as a ‘parent cheat’ as C and I get to sleep in a little bit on Saturday mornings. Shhh, don’t tell anyone that we are flawed parents just like everyone else! haha! She’s snoring away and although it’s cute, it means we have to get her back into the ENT doc. She had her adenoids and tonsils removed and her breathing was like night and day at night. If that makes any sense. But now she’s snoring again and I just want them to have a look see. 

Other than that I really don’t have any new news here. Life is cruising right along without any major roadblocks, so that is good. I can’t complain. I hope that you are doing well, and having low or no pain days. That’s about all we can hope for, yes? Take care. 

I’m leaving you with my latest page. I used Rebecca McMeen’s kit Waverly. I love her style, her dolls are always amazing. 🙂

Until next time,

 

 

AARDA and “My Autoimmune Story”

AARDA and “My Autoimmune Story”

The American Autoimmune Related Disease Association, or AARDA, launched a video series called “My Autoimmune Story” to increase awareness and education of autoimmune disease.  Actress Kelly Martin, who is a spokesperson for AARDA, started off the series with a video of her own. She speaks about losing her sister to lupus and how it has affected her. She also speaks about her role as spokesperson and being dedicated to getting the word out about autoimmune disease.  Here’s her clip. 🙂


Press Release:

AARDA LAUNCHES “MY AUTOIMMUNE STORY” VIDEO SERIES

Emmy-nominated Actress Kellie Martin Shares Her Story, Calls on Others to Share Theirs, Too

New Survey Reveals Need for Increased Awareness/Education of Autoimmune Disease
DETROIT, March 28, 2013 – The American Autoimmune Related Diseases Association (AARDA) has launched its new “My Autoimmune Story” video series on its YouTube channel with the first story contributed by AARDA’s longtime spokesperson, Emmy-nominated actress Kellie Martin.

Part of AARDA’s 2013 March is National Autoimmune Awareness Month activities, the goal of the new series is to give the 50 million Americans afflicted with autoimmune disease (AD), as well as their families and friends, a national voice and platform to share their personal story.

“Preparing and sharing our personal autoimmune stories will help build critical mass and focus national attention on a major disease category in this country that is often overlooked,” said Martin, who has served as AARDA’s spokesperson since 1999. “Imagine the impact we would have if just one percent of the 50 million Americans suffering from autoimmune disease uploaded a video… that’s 500,000 stories.”

AARDA hopes by collecting and featuring these short videos, it will help educate people about the widespread impact of ADs, the difficulties in getting a diagnosis, the family or genetic component and the financial and emotional burden of living with these chronic illnesses.

AARDA is asking Americans who have been affected by AD – patients, families and friends — to post a video response to Martin’s video, sharing their autoimmune story in a 1-3 minute video vignette (www.youtube.com/aardatube).

 

Wow, if only 1 percent of the 50 million people made a video….think of the impact of that could bring to raising awareness buy paroxetine!!  That’s an incredible amount of people dealing with autoimmune disease in this country. Does watching this make you want to tell your own story? It does for me. Here is the link to go directly to the video * click here.*  If you’re like me and you’ve never posted a video response to a video before, here is a link to a short tutorial that walks you through the steps pretty easily  * click here.*

 

Sondra DuBose’s autoimmune story. Check it out 🙂

 

I’m totally nervous about doing this but I’m going to do it. Are you ready to tell your story too?

 

 

 

 

 

 

 

 

 

 

 

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