My name is Michelle and I decided to start a blog about my illness and my life. I became sick in 2006 and at that time I didn’t know what was happening to me. I’ve had a few diagnoses; lupus, UCTD, MCTD, RA, but after biopsy it was found to be dermatomyositis or DM. DM is one of the three inflammatory myopathies; the other two are polymyositis and inclusion body myositis. It’s a rare autoimmune form of muscular dystrophy. According to The Muscular Dystrophy Association there are only 20,000 people in the U.S. with DM. Lucky me! ha! I also acquired small fiber neuropathy. To round it out I’ve been recently diagnosed with CFS/ME, or Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
With this blog I hope to accomplish a couple of things. One is the therapeutic aspect of getting it all out so it’s not jumbling around in my mind driving me crazy, and two, if anyone out there is battling an autoimmune disease they can know that they’re not alone. All of your fears and frustrations I share. It’s a very scary thing to know that your body is attacking itself and there is no cure. All we can do is take the medicine that they tell us to take, try and stay as healthy as we can, stay away from stress (ha) and pray. Oh, and seek support! I have some really amazing autoimmune sisters and brothers out there.
Some days I hope to get some good information out there to you, and some days are more likely than not going to be whine-fest days. Either way, welcome and feel free to comment or drop me a line.