Comments on: About Me http://arimayasheart.com move over! I wanna change lanes.... Fri, 23 Mar 2012 14:08:10 +0000 hourly 1 http://wordpress.org/?v=3.0.5 By: Michelle http://arimayasheart.com/about-2/comment-page-1/#comment-1796 Michelle Tue, 16 Nov 2010 04:54:55 +0000 http://arimayasheart.com/?page_id=11#comment-1796 Hey Maria, Do you have a primary care doc that you see, or are you seeing a rheumatologist? I can't give you any medical advice as I'm not qualified for that, but I can listen, relate, and give you some moral support if you would like it. Feel free to come back and talk! Take care and be well, Michelle please check out this link http://www.myositis.org/template/index.cfm Hey Maria,
Do you have a primary care doc that you see, or are you seeing a rheumatologist? I can’t give you any medical advice as I’m not qualified for that, but I can listen, relate, and give you some moral support if you would like it.
Feel free to come back and talk!
Take care and be well,
Michelle
please check out this link
http://www.myositis.org/template/index.cfm

]]> By: maria cano http://arimayasheart.com/about-2/comment-page-1/#comment-1794 maria cano Sun, 14 Nov 2010 21:34:45 +0000 http://arimayasheart.com/?page_id=11#comment-1794 I need help Iam suffrering for 2 years dermatomyositis some body can give some tips Itake prednisone so helpme please I need help Iam suffrering for 2 years dermatomyositis some body can give some tips Itake prednisone so helpme please

]]> By: Michelle http://arimayasheart.com/about-2/comment-page-1/#comment-1792 Michelle Sun, 14 Nov 2010 05:29:48 +0000 http://arimayasheart.com/?page_id=11#comment-1792 Hey Lilli, So sorry for the late reply-you can see my track record, lol! I've been really flaring these past few days, I'm sure you know how it is :-) I'm glad you found my blog, it's good to have people who are going through the same things to talk to, we are not alone. And the sad thing is, there are so MANY of us. Before I got sick I never even heard the word autoimmunity and if I did, I sure don't remember. Now, I've met hundreds and hundreds of people (online) and a few in person. I'm so glad that like me you have a supportive partner in this life. You wouldn't believe the stories I've heard from women who's partners are so incredibly unsupportive, I really don't know how they make it through the day. I haven't been writing much lately, I've been really on a downward spiral with my health and mental health as well. I don't want to quit blogging, I'm just hesitant to write lately because I can't find much good, (other than my family) but I'll be around =) So come back and delve into some old posts! lol I'll keep you in my thoughts and prayers for an answer, and also some relief from symptoms. Having a few good days does wonders for the soul. Take care and be well, Michelle Hey Lilli,
So sorry for the late reply-you can see my track record, lol! I’ve been really flaring these past few days, I’m sure you know how it is :-) I’m glad you found my blog, it’s good to have people who are going through the same things to talk to, we are not alone. And the sad thing is, there are so MANY of us. Before I got sick I never even heard the word autoimmunity and if I did, I sure don’t remember. Now, I’ve met hundreds and hundreds of people (online) and a few in person.
I’m so glad that like me you have a supportive partner in this life. You wouldn’t believe the stories I’ve heard from women who’s partners are so incredibly unsupportive, I really don’t know how they make it through the day.
I haven’t been writing much lately, I’ve been really on a downward spiral with my health and mental health as well. I don’t want to quit blogging, I’m just hesitant to write lately because I can’t find much good, (other than my family) but I’ll be around =) So come back and delve into some old posts! lol
I’ll keep you in my thoughts and prayers for an answer, and also some relief from symptoms. Having a few good days does wonders for the soul.
Take care and be well,
Michelle

]]> By: Lilli Sarantos http://arimayasheart.com/about-2/comment-page-1/#comment-1783 Lilli Sarantos Tue, 09 Nov 2010 12:34:51 +0000 http://arimayasheart.com/?page_id=11#comment-1783 Hi Michelle! I'm so glad I found this site... Many times, I too have the unending stream of thoughts just running through my mind dealing with the pain, swelling etc. I have Type 1 diabetes (since I'm 12), Celiac Disease (dx 2007) and have been dealing with a Rheumatological mystery for a long time - but most recently dx as Lupus - although, I had 2 doctors tell me after that one "wasn't 100% convinced it was Lupus" and another (and my personal favorite) tell me "you want a label? Well then you're label is you don't have Lupus".... Well, thank you then - So what is it then? Positive ANA, elevated sed rate, false positive syphilis, positive anti cardio lipin antibodies, and more... What aggravates me is that although the rheumy's are so quick to tell me what its not, or what it "might" be, NO ONE can tell me what it is.... I'm 40 and like you, so incredibly blessed to have a saint of a husband... I kid with him that he must of done something bad in a past life to be stuck with me... And I have 3 beautiful children that are my life. Oh, I could could go on and on...I haven't even scratched the surface - but I look forward to reading your posts... It makes me feel like I'm not alone... Thanks Michelle! Hi Michelle!
I’m so glad I found this site… Many times, I too have the unending stream of thoughts just running through my mind dealing with the pain, swelling etc. I have Type 1 diabetes (since I’m 12), Celiac Disease (dx 2007) and have been dealing with a Rheumatological mystery for a long time – but most recently dx as Lupus – although, I had 2 doctors tell me after that one “wasn’t 100% convinced it was Lupus” and another (and my personal favorite) tell me “you want a label? Well then you’re label is you don’t have Lupus”…. Well, thank you then – So what is it then? Positive ANA, elevated sed rate, false positive syphilis, positive anti cardio lipin antibodies, and more… What aggravates me is that although the rheumy’s are so quick to tell me what its not, or what it “might” be, NO ONE can tell me what it is…. I’m 40 and like you, so incredibly blessed to have a saint of a husband… I kid with him that he must of done something bad in a past life to be stuck with me… And I have 3 beautiful children that are my life. Oh, I could could go on and on…I haven’t even scratched the surface – but I look forward to reading your posts… It makes me feel like I’m not alone… Thanks Michelle!

]]> By: Michelle http://arimayasheart.com/about-2/comment-page-1/#comment-1345 Michelle Sat, 04 Sep 2010 03:37:23 +0000 http://arimayasheart.com/?page_id=11#comment-1345 Hey Chris!! I found you in my spam-you're not spammy at all! =0) I'm glad you like my blog, and even happier that I'm able to help you in any small way. It sucks to feel alone in this. I do understand the range of emotions you go through with all the docs that a) don't know anything about autoimmunity b) tell you that you just need to 'walk more' and c) treat you like a malingerer and/or a seeker. I am SO glad that you found a good rheumy. Yay!!! There's nothing like finally finding someone who believes in you and better than that is willing to keep on trying to figure you out. OK, wow. You are appealing for the second time?? I am so sorry. How frustrating and depressing that must be. The first time I was denied they told me that I was able to work 40 hour weeks with x amount of lifting, walking etc. At the time I got the letter I was in a wheelchair for any outings. I actually laughed out loud when I read it and then realized what an uphill battle I was going to have. I know this is a REALLY late response, you can see my track record on those. (very late.) But I hope you stop by again. Leave me a comment and let me know if I can email you with some disability info. And a virtual hug! Take care and be well hun Michelle Hey Chris!!
I found you in my spam-you’re not spammy at all! =0) I’m glad you like my blog, and even happier that I’m able to help you in any small way. It sucks to feel alone in this. I do understand the range of emotions you go through with all the docs that a) don’t know anything about autoimmunity b) tell you that you just need to ‘walk more’ and c) treat you like a malingerer and/or a seeker. I am SO glad that you found a good rheumy. Yay!!! There’s nothing like finally finding someone who believes in you and better than that is willing to keep on trying to figure you out.
OK, wow. You are appealing for the second time?? I am so sorry. How frustrating and depressing that must be. The first time I was denied they told me that I was able to work 40 hour weeks with x amount of lifting, walking etc. At the time I got the letter I was in a wheelchair for any outings. I actually laughed out loud when I read it and then realized what an uphill battle I was going to have.
I know this is a REALLY late response, you can see my track record on those. (very late.) But I hope you stop by again. Leave me a comment and let me know if I can email you with some disability info. And a virtual hug!
Take care and be well hun
Michelle

]]> By: Christine Molloy http://arimayasheart.com/about-2/comment-page-1/#comment-1279 Christine Molloy Thu, 26 Aug 2010 13:58:00 +0000 http://arimayasheart.com/?page_id=11#comment-1279 Hi Michelle- I am reading your blog for the first time and just wnat to tell you how wonderful it is! I am also in the middle of an autoimmune nightmare with no definite diagnosis (after 2 1/2 yrs) although the current thought is Sjogren's. I have at least finally found a rheum in Boston who not only believes there is something wrong with me, but is terating as a rheum patient which has brought me some success at times (depending on your definition of success!). That being said, it is an endless struggle with doctors, tests, hospitalizations, etc. I was happt to read that you finally got your Medicare. I have been out of work as a nurse since Nov. 2008 and am in my second appeal for SSDI/Medicare. Your blog is helping me to feel so not alone so thank you for that. i have an incredible support system of family and friends, but the bottom line is: noone really understands what it's like to go through life every day with such a difficult illness. God Bless~ Chris Hi Michelle-

I am reading your blog for the first time and just wnat to tell you how wonderful it is! I am also in the middle of an autoimmune nightmare with no definite diagnosis (after 2 1/2 yrs) although the current thought is Sjogren’s. I have at least finally found a rheum in Boston who not only believes there is something wrong with me, but is terating as a rheum patient which has brought me some success at times (depending on your definition of success!).

That being said, it is an endless struggle with doctors, tests, hospitalizations, etc. I was happt to read that you finally got your Medicare. I have been out of work as a nurse since Nov. 2008 and am in my second appeal for SSDI/Medicare.

Your blog is helping me to feel so not alone so thank you for that. i have an incredible support system of family and friends, but the bottom line is: noone really understands what it’s like to go through life every day with such a difficult illness. God Bless~
Chris

]]> By: Michelle http://arimayasheart.com/about-2/comment-page-1/#comment-882 Michelle Mon, 19 Apr 2010 15:16:32 +0000 http://arimayasheart.com/?page_id=11#comment-882 Hey Trish, I'm glad you found me too :) I'm afraid I haven't posted anything in a while, I'm sick sick sick. bleh. You know, I haven't thought of this in years, and reading your message just triggered a memory. Years ago I went through a battery of tests to try and figure out what the heck was wrong with me. At the time I was having severe muscle contractions where my arms would twist and contort and freeze like that. Wow, it is so weird how the mind can just put memories away. This was WAY before I got sick. (last 4 years) and I tested + for Epstein Barr. The test said I had had it at some point, it's all a blur now. I wonder how many autoimmune patients have had or have that type of syndrome. I'm saying a prayer for you to catch a break and feel like the old you. My direct line to His ear has been busy non-stop these past few weeks, but I know He's listening. :) Please stop by anytime, drop me a note and I will get back to you, hopefully in a more timely fashion ;-p xo Michelle Hey Trish,
I’m glad you found me too :) I’m afraid I haven’t posted anything in a while, I’m sick sick sick. bleh.
You know, I haven’t thought of this in years, and reading your message just triggered a memory. Years ago I went through a battery of tests to try and figure out what the heck was wrong with me. At the time I was having severe muscle contractions where my arms would twist and contort and freeze like that. Wow, it is so weird how the mind can just put memories away. This was WAY before I got sick. (last 4 years) and I tested + for Epstein Barr. The test said I had had it at some point, it’s all a blur now. I wonder how many autoimmune patients have had or have that type of syndrome.
I’m saying a prayer for you to catch a break and feel like the old you. My direct line to His ear has been busy non-stop these past few weeks, but I know He’s listening. :) Please stop by anytime, drop me a note and I will get back to you, hopefully in a more timely fashion ;-p
xo
Michelle

]]> By: Trish http://arimayasheart.com/about-2/comment-page-1/#comment-880 Trish Fri, 16 Apr 2010 12:52:25 +0000 http://arimayasheart.com/?page_id=11#comment-880 Hi Michele, I'm glad I found your site. I'm told I have Fibromyalgia, (not sure about that) just a positve DS DNA. Chronic Fatigue ( large mix of viruses, mono etc) and presumed Lyme. I've been pretty sick for 3 years now. All I know is that my back is constantly stiff and I find it hard to function. I also take a ton of medicine. I haven't had much energy for anything else but sitting in front of the computer. I will be perusing your site for any and all information and links to other blogs. Thanks for being here. Hi Michele,
I’m glad I found your site. I’m told I have Fibromyalgia, (not sure about that) just a positve DS DNA. Chronic Fatigue ( large mix of viruses, mono etc) and presumed Lyme. I’ve been pretty sick for 3 years now. All I know is that my back is constantly stiff and I find it hard to function. I also take a ton of medicine. I haven’t had much energy for anything else but sitting in front of the computer. I will be perusing your site for any and all information and links to other blogs. Thanks for being here.

]]> By: Michelle http://arimayasheart.com/about-2/comment-page-1/#comment-865 Michelle Fri, 26 Mar 2010 05:48:29 +0000 http://arimayasheart.com/?page_id=11#comment-865 Hey Hilde, I'm glad you stopped in again :) People in Belgium don't wear hats? Baseball hats? Stocking caps? They're really big here. I think I look really bad in a baseball cap but I'll wear one once in a while. My granddaughter has a collection of hats, oh she will wear Any hat, lol. She's in love with'em. You take care and stop by any time. Wishing you the best too Michelle Hey Hilde,
I’m glad you stopped in again :) People in Belgium don’t wear hats? Baseball hats? Stocking caps? They’re really big here. I think I look really bad in a baseball cap but I’ll wear one once in a while. My granddaughter has a collection of hats, oh she will wear Any hat, lol. She’s in love with’em.
You take care and stop by any time. Wishing you the best too
Michelle

]]> By: hilde http://arimayasheart.com/about-2/comment-page-1/#comment-859 hilde Tue, 16 Mar 2010 13:18:55 +0000 http://arimayasheart.com/?page_id=11#comment-859 hi Michelle, great to hear from you! and congratulations with your new rheumatologist! it's important to have a good doctor on which you can rely and who takes time to listen. so you also take plaquenil? so do I. quite effective, but it can give eye-problems. and hair loss.. I have an eye-control every six months, my doctor doesn't want to take any risks. the sun makes me sick, with headache, weakness, ... I wear sunscreen ànd a hat. in the beginning I didn't want to wear it because of the stupid comments (in Belgium people don't wear hats. they want to get as tanned as possible and think they're free of getting skin cancer..) but now I have a small collection.. I wish you all the best, Michelle. take care and I'll write you soon again. hilde hi Michelle,

great to hear from you! and congratulations with your new rheumatologist! it’s important to have a good doctor on which you can rely and who takes time to listen.
so you also take plaquenil? so do I. quite effective, but it can give eye-problems. and hair loss.. I have an eye-control every six months, my doctor doesn’t want to take any risks.
the sun makes me sick, with headache, weakness, … I wear sunscreen ànd a hat. in the beginning I didn’t want to wear it because of the stupid comments (in Belgium people don’t wear hats. they want to get as tanned as possible and think they’re free of getting skin cancer..) but now I have a small collection..
I wish you all the best, Michelle. take care and I’ll write you soon again.
hilde

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