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broken links and weirdness

broken links and weirdness

It’s been so long since I’ve blogged regularly; there are a ton of broken links here that I’ll be fixing. I was scanning through earlier and I saw that one of my ‘new sick chick’ rants had a link for viagra. hahaha! I don’t know if it was a link that changed or if some bot got into my account, but if you see any links for viagra or viagra level weirdness, know that it’s not me. lol

 

 

I’m back! And feelin wiggy…

I’m back! And feelin wiggy…

I can’t believe we are halfway through the year and I’m still pretty much holding down my bed. There are SO many things that; have happened/are happening/are going to happen, it is overwhelming at times. I can’t post about them specifically as they are family issues, but the stress has all but immobilized me.

I have been putting off going back to the new rheumy to start treatment because there is too much going on and I’m needed here to help. At the same time, the longer I wait and the more I do, the sicker I become. It’s so cyclic. Yesterday I told Big C, just go ahead and call. Try and squeeze it in on any day that we have free and I’ll be there. I just can’t wait any longer. Oh, the guilt of it all is unbearable. I feel guilty now when I’m really sick because so many people need me. I’ve been pushing myself and I’m not new enough to think this will have no consequence. sigh. I need a shower people!!! Yes, that is my goal is to make it into the shower today. Taking it minute by minute.

Recently I posted my first ‘post’ Cushings picture on FB. I don’t look as bad as I think I do.(‘they’ say)  I still got it! LOL No, I just got more of it. 🙂 I’m finally coming to terms with the ‘cosmetic’ side of the disease. I am huge compared to my natural weight, but you know what? C still thinks I’m hot. And really, that’s all that matters. woot! I think he’s nuts but I’ll take it. Seriously though, we have seen more lows than highs in our 11 years together. They are usually not our lows, but lows we have had to deal with nonetheless. And we are still together. We are still desperately in love with each other. We are still our favorite people to be around, we make each other happy. He is an amazing man, and I thank God everyday that I was blessed to find my soulmate. OK, enough sappy shmappy.

But in the same vein as vain, ha ha ooohh k, I have found myself scouring the wig catalog that keeps finding it’s way into my mailbox. I’m convinced C’s ex had it mailed to me to begin with, but now I love’em! There are so many rad wigs out there. I WANT ONE. Is that crazy? Are wigs just for grammas anymore? I mean older grammas. I know I’m a gramma. Just not old yet. I’ll be 43 tomorrow, so I’m young to my daddy who’d 80, but ancient to my daughter who’s 20. whatever. So, I find myself picking them up and looking through and actually pining over 2 of them. Wigs. Pining over wigs. Who am I???? 🙂 I’m losing my hair, that’s who I am. So anyway, I decide to look up the company online, and just Google the name and the first couple are always a couple of ads. One of them says, why buy from company x when you can get quality for the same price? And I decided to click on there. Well, I must have been in need of a laugh, because I could not stop laughing. Belly buster laughs. I’m sure it’s-you had to be there-kind of a thing. But each model, down each row was just HILARIOUS!! And I’m not knocking wigs, or wig models for that matter, per say, just these particular ones. There was 3 faces they had while modeling the wigs. 1. faux sexy tigress 2. scared 3. incredibly embarrased  
I just couldn’t stop laughing. And who did the final go ahead with the website after seeing these shots?? I’m not talking about Paula Young’s site btw, I put a link up to her site. That’s the catalogue I keep receiving.  I really, really want the Renni, in that exact color… OK, I’m done yackin about wigs.

I’m really missing being here. I’ll be here more often. Promise.
until next time,

Buffalo Humps and Muffin Tops, Welcome to the World Of Prednisone!

Buffalo Humps and Muffin Tops, Welcome to the World Of Prednisone!

This video is by Lisa Copen, founder of Rest Ministries; a Christian non-profit for the chronically ill.  Rest Ministries puts out Hopekeepers Magazine as well as hosting a social networking site called Restministries and Hopekeepers Sunroom.  I’m a big fan of Lisa, who started this all up on her own while battling crippling RA.  If you check out the site you’ll find a bookstore that has some really good books on chronic illness, invisible illness, and more. She’s definitely one of my inspirations, one of my heros!

OK, here’s my disclaimer.  This is not a paid advertisement for any of the above. This post is my opinion, from my perspective.  With that said, here ya go.

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Until next time

Easter naps, fat legs, and Bowie

Easter naps, fat legs, and Bowie

.: Easter Eggies :.
Image by Warm ‘n Fuzzy via Flickr

I spent this Easter in bed, dozing off and on with the laptop sliding off of my legs every now and then.  Not my ideal Easter.  The Big C cooked a delicious ham with all the fixins- and I slept.  The kids had an egg hunt, and I slept through it.  A few of my grandkids got overly boisterous and got time out, I slept through it… lol.

I’m so tired of being sick and tired.  And yes, I know that expression is tired, but it’s so freakin true. I haven’t been around much because I’m afraid to just blog about negative stuff, or sound like I’m whining.  Each day I think about a post and I end up not doing it either because I am too sick, or too depressed.  I refuse to let that get the best of me!!  So every once in a while there will be a post with a lot of whining and bitching…no big deal, right?

Here I go…

Read More Read More

The ONLY time I’ve ever liked the song Doe Re Mi

The ONLY time I’ve ever liked the song Doe Re Mi

So I’m laying flat on my back hiding from the mob in the house (kids, grandkids, the works) and I decided to go through my bookmarks and get rid of all the crap that I don’t use, have never looked at, and if there’s time before morning (ha) to re-organize them.  But of course, I got sidetracked and logged in to my blogrover and started going through the blogs.  I quickly crossed out all of the blogs that I knew I would never read, then started going throught the ones I wasn’t familiar with.  When I opened up Smart Mobs the first thing that caught my eye was this video.  I remember seeing one like this a while back but the travelers seemed more pissed at having chaos in their way and slowing down their travel than these folks do.  Have a look

Just goofin around

Just goofin around

Me and the Bean are hanging out together tonight.  (Her nose is drying up thank goodness) and I’ve got the laptop with us.  We got online to watch some Sesame Street You Tube clips and I came across a site called HULU.  Well, I gotta tell you, I LOVE IT!!!  I’m all about free, if you asked someone that knows me that might say I was cheap, but I call it frugal.  Anyway, you have to check out this site.  Free movies, tv shows, video games and more.  I called the Big C to come check it out because they have free episodes of Heroes.  Yeeaaahh boeeeeyyy.

I’ll leave you with a clip of Ice Age 3, the first movie which made my husband laugh out loud in the movie theater…louder than anyone else.  One of those belly laughs where you might just snort and it’s ok…

Here’s the clip  🙂

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