Posted By Michelle on September 2, 2008
since I’ve posted anything! The bean says that ain’t cool, and you can tell by the goggles-she’s cool. These last few weeks have been full of flares and sleep. Not a lot of fun, and sure not postworthy unless I wanted to get on here and whine-aaaaarrrrgh!
I’m gonna whine a little anyway… he he I did go and get my biopsies done. We had to go to a bigger hospital than what we have here. It took 5 months to get in to see this neuromuscular surgeon. So frustrating. My burning symptoms have just gotten worse and worse, and even though I knew that just by having the punch biopsies done my burning wasn’t going to go away, I was still frustrated. No one should have to wait 5 months for an appointment. When the day came I was so nervous I couldn’t eat anything, so by the time we got there I was starving. We were running late because traffic was really heavy and even though we left 2 hours before the appointment and the drive is an hour and a half, we just barely made it on time. When we got up to the right floor and found the desk, I handed the receptionist this form that they sent me to fill out prior to the appointment. She stared at me with an expectant look on her face. “yeesss?” (I blame my rudeness on low blood sugar) She said “Didn’t you receive the packet we mailed out to you?” Ah, shit. It’s five minutes past the appointment time and she says, “Don’t worry. Just fill out as much as you can so the medical assistant doesn’t get mad.” WTF? So, she hands me this packet that’s about half as thick as the phone book and I glance to the left of me where another woman was checking in and she was just reaching out to grab the ‘packet’. Somebody must’ve been sleeping on mail-all-the-packets-out day. So we found a seat and I started answering a million questions while my stomach rumbled and grumbled. I didn’t have any addresses for my docs, or fax numbers and such, and then I answered every question pertaining to my health known to man. I actually finished it and turned it in. Finally the medical assistant called me back, and she was nice ( I finished my packet) and we got situated in the room. When the doc came in he looked tired and cranky and he said “So, they forgot about you. I’ve been sitting in my office reading for the last hour.” Turns out the front desk forgot to check me in on the computer and me and the doc both were sitting there for an hour. Me frantically filling in questions and him reading. By now I’m so hungry I’m shaky. So the doc is really cranky and all I can think about is getting the heck out of there so I can eat. He tells me his partner is going to perfom the biopsies and he leaves the room. So I’m laying on the table and I’m dreaming of taco bell, jack in the box, biiiig milkshakes, aaaggghhh. The Doc decides to do them on my left leg because he said that was the worst leg when it came to all of the manual tests-push, pull, poke with a pin, etc. His partner tells me that she is going to use sterile technique to help ensure no infection will come about. She says that we have to be careful of infection. I watch her set up the tray and glove herself and drape me, and what she doesn’t know is that my profession is a medical assistant and had I done that type of sterile technique at work I would have been fired. It was all wrong! She leaned her body over the field, no sterile gloves, ugh, and so on. Oh gawd, I’m already thinking of getting the worst staph infection in the history of, or MRSA or anything completely irrational. She had me lay on my side and she injected my hip first with a numb-er, I think she said lidocaine, and that hurt like a bitch. It burned and I squeezed The Big C’s hand and laughed which is what I always do when I’m nervous..it’s like a nervous tic only way more socially unacceptable. The rest I couldn’t see from my vantage point but C said it was way cool. This little tool she pushed up against my skin and twisted and twisted. Then she pulled it out and used teeny tiny tweezers and scissors to grab it and put it in a jar. She did the same on my lower leg above my ankle which burned a million times worse than the hip area. When I asked her why she said because there is less fat there, more fat up on my hip. Thanks. That was it. She bandaged me up and told me not to get it wet for 3 days. It was 100 degrees that day and I needed a shower. So we did alot of taping so I could take cool showers. End of story. It has been WAY too long since I blogged. My next post with be shorter and sweeter :) I miss the blogoshpere, I’m back baby!!! I just have to stay out of the depression rut that comes with being in pain for too long of stretches. Man, it’s a killer. I’m trying to stay happy even if I have to fake it. If you walk around smiling, it really does help, even if you look like an idiot, it wards of the blues. Usually. Sometimes. Well, it worked today anyways. I need to thesaurus the word anyways, I use it too much. Regardless, I will use that word more often. BTW, anyways wasn’t in there. It’s anyway. sigh.
It’s good to be back, until next time, with no whine!
Category: Health, Life |
3 Comments »
Tags: Autoimmunity, blogging, burning, Chronic illness, Chronic Illness Blog, chronic pain, depression, flare, neuromuscular, punch biopsy, small fiber neuropathy
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I’ve been meaning to post here for the past 2 days, but I have been flaring like crazy. It’s 1:30 in the morning here and it’s the first time in the past 48 hours that I feel almost normal. I know that there are so many people who have different autoimmune diseases, and other diseases for that matter, and I don’t know how people do it. How do you get up in the morning and get ready and go about your day? I want that back in the most desperate way. I do realize that this is depression talking, and that things WILL get better, but for now I just can’t see the light at the end of the tunnel. I still have a month left before I see the neuromuscular doc for my biopsy results. Has anyone had to wait 2 months for results??? So for now, I just keep taking 2700mg of neurontin a day that does absolutely nothing and wait.
And that brings me to National Invisible Chronic Illness Awareness Week. I wanted to write about this on Monday, see above, lol. My bloggin friend Connie will be speaking this week and I sure hope I didn’t miss it. But if I did, I heard that it will all be archived, so that is cool. I will be checking it out tomorrow, God willing, I WILL NOT BE FLARING SO HARD!!! There. That will work I’m sure. There was something else I wanted to write but my head is full of mush so I’m signing out. Peace.
