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withdrawal- it’s what’s for dinner

And breakfast and lunch. My hands are shaking so badly right now it’s near impossible to type. sigh. I am still undecided if going off my pain meds was a good idea or not. It’s really hard to think clearly when you are in withdrawal. And the same goes for pain. When you [...]

Where Did the Summer Go?

I have been pretty quiet I know, it’s been a weird and kinda crazy summer.  I finally got my diagnosis (dermatomyositis), got my first treatment; landed in the ER a couple of days later with WORST SIDE EFFECT EVER, then went on to have a series of strange days.

I woke up in the [...]

Have lupus? The Lupus Alliance of America needs your help

In the beginning of my illness, I was told that I had lupus. I immediately went home, cried, then read everything I could get my hands on. I was online reading medical journal material, lupus blogs, lab reference sites, everything and anything (except for sites with no reputation, and the ‘cure all’ sites, ugh).

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The Doc with some Bach

I like this PSA.  I think the doc is coolio.

Enjoy,

I’ll be back,

I’m Large and in Charge or Duck,Thar She Blows!

There is so much going on with my body I’m just spinning.  My muscles from the waist down go into lockdown mode anytime I lay down.  My superfun pittingedema (say it fast 3 times-it sounds like a Mexican dish) comes and goes, weeeee!  And, the lump that is in the middle of my neck.  [...]