Life in the Autoimmune Lane » Autoimmunity

the angry patient

Michelle — Wed, 17 Aug 2011 19:59:34 +0000

I’m frustrated and pissed. This post has no happy ending. With that said-

I’m completely off all pain meds. Not just narcotic but all. I am still on the fence as to whether it was a ‘good idea’ to go off of narcotic pain meds. I don’t have that sick poison feeling anymore but [...]

Day 5

Michelle — Tue, 26 Jul 2011 22:40:06 +0000

It’s been five days since i’ve been off all of my pain meds and man oh man I am so regretting that. And then I’m not. I did it. It took a couple of months but I am pain med free and maybe, just maybe I will get the correct meds and the correct [...]

A nightmare come true-speechless

Michelle — Wed, 13 Apr 2011 09:24:21 +0000

I’m sick. I know this much. My headache is finally gone, it feels gone. Is it gone? I keep rolling over, trying to go back to sleep. He’s shaking me. Do you know who I am???? Over and over again. I just pull away. All I want to do is sleep while I can. [...]

Mish-Mash Friday with a little bit a dis and a little bit a dat

Michelle — Fri, 01 Oct 2010 23:30:32 +0000

I get the weirdest spam on this blog. There’s tons that are just gobbledy-gook like a cat ran down the keyboard and here in there in the mix are some smut words. Other times there is a paragraph of nonsense. Makes me laugh as I go through them. Here’s one

I’ve been searching for [...]

Where Did the Summer Go?

Michelle — Thu, 16 Sep 2010 04:01:36 +0000

I have been pretty quiet I know, it’s been a weird and kinda crazy summer. I finally got my diagnosis (dermatomyositis), got my first treatment; landed in the ER a couple of days later with WORST SIDE EFFECT EVER, then went on to have a series of strange days.

I woke up in the [...]

Cure JM a finalist! 250,000 for research!!!!

Michelle — Sat, 04 Sep 2010 00:04:00 +0000

I just wanted to drop a quick THANK YOU for all of you out there who diligently texted and facebooked and on-site voted for Cure JM to win in the Pepsi Refresh Challenge. Oh my gosh, I still can’t believe we won!!!!! It’s amazing, wonderful, incredible, and oh so needed! Thank you. All the [...]

Pepsi Refresh Project; Cure JM in 4th Place!

Michelle — Mon, 16 Aug 2010 18:26:06 +0000

Image via Wikipedia

I posted earlier about Cure JM having a chance at a $250,000 grant from Pepsi and we still do! Voting is open until the end of August. In July we were in 12th place and as of today we are in 4th. Woot Woot!! The top two will each receive [...]

Infusion, Confusion, Intermission…

Michelle — Thu, 05 Aug 2010 08:08:28 +0000

I am in the process of getting a new treatment this week. It’s called IVIg and it’s exciting and it sucks. When I say it sucks, it’s because I’m the lucky ’50%’ that the nurse said would get a killer headache. It’s the worst one I’ve ever had. I am banking so much [...]

Make Juvenile Myositis A Memory!

Michelle — Sat, 24 Jul 2010 10:43:32 +0000

Pepsi is hosting a contest and is giving away 250K to the winner! I’m supporting Make Juvenile Myositis a Memory by The Cure JM Foundation. About 5,000 kids in the US are affected by this disease, putting it in the ‘rare disease’ category. But just because that number isn’t astronomical, doesn’t mean that they [...]

Have lupus? The Lupus Alliance of America needs your help

Michelle — Fri, 26 Mar 2010 09:54:03 +0000

In the beginning of my illness, I was told that I had lupus. I immediately went home, cried, then read everything I could get my hands on. I was online reading medical journal material, lupus blogs, lab reference sites, everything and anything (except for sites with no reputation, and the ‘cure all’ sites, ugh).

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