I just wanted to drop a quick THANK YOU for all of you out there who diligently texted and facebooked and on-site voted for Cure JM to win in the Pepsi Refresh Challenge. Oh my gosh, I still can’t believe we won!!!!! It’s amazing, wonderful, incredible, and oh so needed! Thank you. All the [...]
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I am in the process of getting a new treatment this week. It’s called IVIg and it’s exciting and it sucks. When I say it sucks, it’s because I’m the lucky ’50%’ that the nurse said would get a killer headache. It’s the worst one I’ve ever had. I am banking so much [...] I’ve been a little backwards lately…a lot going on in the Lane. I wanted to talk about MG and APS as both have awareness months in June. Even though I kind of missed the boat on talking about them earlier it’s ok, as long as word gets out, it’s ok if it’s late. Right?? [...] I can’t believe we are halfway through the year and I’m still pretty much holding down my bed. There are SO many things that; have happened/are happening/are going to happen, it is overwhelming at times. I can’t post about them specifically as they are family issues, but the stress has all but immobilized me. [...]
I have dropped off the radar again. Not intentionally; the days just seem to meld into one long day, and I’ve been so sick, time is getting away from me. I haven’t talked to my best friend in at least a month. Again, not intentionally. I’ve written so many ‘I’m sorry’ emails in the past, I just don’t know what to say anymore. I feel extrememly guilty about isolating, but at the same time, I can’t seem to stop. I had a horrible realization a few days ago, and it was-I make it through each day and try and get well enough to make it to my next doctor visit. I actually missed my last one. I couldn’t get out of bed so C went and picked up my prescriptions. This is no way to live, I feel powerless to change it. Between non-stop flaring and being a momma, I have no time for anything anymore. Facebook, my Christian groups, Flickr, television, nada. For those who aren’t computer-heads it’s not much of a big deal, but the computer has become part of my life since becoming ill. It’s my ticket out into civilization, lol. Continue reading Depressed and optimistic, is that possible?  |
    
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