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I’m frustrated and pissed. This post has no happy ending. With that said- I’m completely off all pain meds. Not just narcotic but all. I am still on the fence as to whether it was a ‘good idea’ to go off of narcotic pain meds. I don’t have that sick poison feeling anymore but [...] It’s been five days since i’ve been off all of my pain meds and man oh man I am so regretting that. And then I’m not. I did it. It took a couple of months but I am pain med free and maybe, just maybe I will get the correct meds and the correct [...] I have been pretty quiet I know, it’s been a weird and kinda crazy summer. I finally got my diagnosis (dermatomyositis), got my first treatment; landed in the ER a couple of days later with WORST SIDE EFFECT EVER, then went on to have a series of strange days. I woke up in the [...] I am in the process of getting a new treatment this week. It’s called IVIg and it’s exciting and it sucks. When I say it sucks, it’s because I’m the lucky ’50%’ that the nurse said would get a killer headache. It’s the worst one I’ve ever had. I am banking so much [...] I’ve been a little backwards lately…a lot going on in the Lane. I wanted to talk about MG and APS as both have awareness months in June. Even though I kind of missed the boat on talking about them earlier it’s ok, as long as word gets out, it’s ok if it’s late. Right?? [...] |
    
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