Life in the Autoimmune Lane » flare

the angry patient

Michelle — Wed, 17 Aug 2011 19:59:34 +0000

I’m frustrated and pissed. This post has no happy ending. With that said-

I’m completely off all pain meds. Not just narcotic but all. I am still on the fence as to whether it was a ‘good idea’ to go off of narcotic pain meds. I don’t have that sick poison feeling anymore but [...]

Day 5

Michelle — Tue, 26 Jul 2011 22:40:06 +0000

It’s been five days since i’ve been off all of my pain meds and man oh man I am so regretting that. And then I’m not. I did it. It took a couple of months but I am pain med free and maybe, just maybe I will get the correct meds and the correct [...]

Where Did the Summer Go?

Michelle — Thu, 16 Sep 2010 04:01:36 +0000

I have been pretty quiet I know, it’s been a weird and kinda crazy summer. I finally got my diagnosis (dermatomyositis), got my first treatment; landed in the ER a couple of days later with WORST SIDE EFFECT EVER, then went on to have a series of strange days.

I woke up in the [...]

Infusion, Confusion, Intermission…

Michelle — Thu, 05 Aug 2010 08:08:28 +0000

I am in the process of getting a new treatment this week. It’s called IVIg and it’s exciting and it sucks. When I say it sucks, it’s because I’m the lucky ’50%’ that the nurse said would get a killer headache. It’s the worst one I’ve ever had. I am banking so much [...]

June is Myasthenia Gravis Awareness Month-yes, I’m late!

Michelle — Thu, 01 Jul 2010 20:17:54 +0000

I’ve been a little backwards lately…a lot going on in the Lane. I wanted to talk about MG and APS as both have awareness months in June. Even though I kind of missed the boat on talking about them earlier it’s ok, as long as word gets out, it’s ok if it’s late. Right?? [...]

I’m back! And feelin wiggy…

Michelle — Fri, 04 Jun 2010 20:16:11 +0000

I can’t believe we are halfway through the year and I’m still pretty much holding down my bed. There are SO many things that; have happened/are happening/are going to happen, it is overwhelming at times. I can’t post about them specifically as they are family issues, but the stress has all but immobilized me.

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Depressed and optimistic, is that possible?

Michelle — Fri, 07 May 2010 23:16:15 +0000

I have dropped off the radar again. Not intentionally; the days just seem to meld into one long day, and I’ve been so sick, time is getting away from me. I haven’t talked to my best friend in at least a month. Again, not intentionally. I’ve written so many ‘I’m sorry’ emails [...]

Docs playin peek-a-boo with diagnoses

Michelle — Thu, 10 Dec 2009 22:05:42 +0000

I have some good news-(drumroll please) I finally got Medicare ( woo hoo!!!!)!!! I went 3 years with no insurance after I lost my job. The amount of money I owe for medical bills is astronomical. I think I can safely say that my credit isn’t credible anymore. No one will be giving me [...]

What’s up

Michelle — Wed, 10 Sep 2008 09:39:20 +0000

I’ve been meaning to post here for the past 2 days, but I have been flaring like crazy. It’s 1:30 in the morning here and it’s the first time in the past 48 hours that I feel almost normal. I know that there are so many people who have different autoimmune diseases, and other [...]

It’s been a while…

Michelle — Wed, 03 Sep 2008 00:51:58 +0000

since I’ve posted anything! The bean says that ain’t cool, and you can tell by the goggles-she’s cool. These last few weeks have been full of flares and sleep. Not a lot of fun, and sure not postworthy unless I wanted to get on here and whine-aaaaarrrrgh!

I’m gonna whine a [...]