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Pepsi Refresh Project; Cure JM in 4th Place!

Pepsi Refresh Project; Cure JM in 4th Place!

Introducing the Pepsi Refresh Project. Pepsi i...
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I posted earlier about Cure JM having a chance at a $250,000 grant from Pepsi and we still do! Voting is open until the end of August. In July we were in 12th place and as of today we are in 4th. Woot Woot!!  The top two will each receive the grants.  This is so amazing, it is truly within our grasp if we all vote and pass along to our friends to vote too.  Will you please take a moment and text to vote, stop in at Facebook and vote and please ask your fb friends to do the same.  It is such a worthwhile cause, I know firsthand the pain and crippling effects this disease has and I can’t even imagine a child having to go through any of it.

To find out more about Juvenile Myositis and the organization Cure JM, check out the video and follow the links below to vote. Pepsi is giving us an amazing opportunity to help our kids with JM and we are so close! Thank you to all of you who are following this and voting. God Bless!

A message from the facebook group:

Thanks for making a difference by helping Cure JM move into 4TH PLACE in the Pepsi Refresh contest, where we are competing with over 400 organizations for a $250,000 grant.

We need to be in the TOP TWO at the end of August to win this grant. Every penny of this grant will go towards research, including an important JM genome study and a cardiovascular risk study in patients with JM. The remaining funds will go towards the Cure JM Program of Excellence research center in Chicago.

We would like to share a recent Facebook post from a JM family, who has played an integral role in the Cure JM Foundation:

“Know how I remember to vote everyday???….Inserting Mason’s feeding tube, giving the IV meds he needs this morning to keep him alive, plus the other meds used to strengthen his depleted bones, and the meds to lower his blood pressure so his enlarged, calcinotic heart will hopefully get better; replacing the pain patch…”

Please vote so that Mason and all of the children with JM can have hope for a better future. Vote THREE times each day, everyday to help Cure JM:

– Text Vote to Pepsi (73774) Type: 100850 to vote *(Stnd txt msg rts apply)
– Vote via FB app: http://www.facebook.com/l/0a580WbtmPvlJZ9FqZauzEfO3eg;bit.ly/CureJMonFB
– Vote for our entire “Kids to Win” team at: http://www.facebook.com/l/0a5806ZfUlE2jdhvEYHUpKnXhvA;pep.si/CureJMKidstoWin4

Sign up for Daily Voting Reminders (and be entered into a contest to win a FREE iPad if Cure JM wins!), please register here: http://www.facebook.com/l/0a580eNdDWUEzr_ZtywByGjqW2w;www.curejm.org (Note: Names and emails will NOT be shared with anyone and are only used for daily voting reminders).

Cure JM Partners in Pepsi Gulf Projects
These groups in the Gulf Projects category are heavily supporting Cure JM. Thank them by using your additional votes in the Gulf categories, which are completely separate from the “regular” Pepsi Refresh voting. Voting links for the three groups we have aligned with are as follows:
http://www.facebook.com/l/0a580NC02G4Vkimv5W1P6uJBcgA;gulf.refresheverything.com/plci
http://www.facebook.com/l/0a580iI6HECgEjWhCqQJHh4J3Kw;gulf.refresheverything.com/mhc
http://www.facebook.com/l/0a580W_EmhYhDIGCaajmFqVCDLw;gulf.refresheverything.com/homesofhope2

Make Juvenile Myositis A Memory!

Make Juvenile Myositis A Memory!

Pepsi is hosting a contest and is giving away 250K to the winner! I’m supporting Make Juvenile Myositis a Memory by The Cure JM Foundation.  About 5,000 kids in the US are affected by this disease, putting it in the ‘rare disease’ category. But just because that number isn’t astronomical, doesn’t mean that they don’t need the funding. These kids are suffering with a painful, debilitation, potentially life threatening disease.

Here’s a video about Emma’s story with JM-

Will you please vote with me and help these kids have a chance at some research grants?  You can go to the Pepsi site and vote at http://www.refresheverything.com/makejmamemory and also on Facebook at the Pepsi Refresh Voting App. You can vote once each day on each site for this cause, but you get to vote 10 times in each day if you have other causes you support.  Thanks in advance, we really have a chance guys. We are in 12th place right now with over 1,000 applicants and there is 7 days to go! Please vote each day if you can.  Thank you!

The Power of 10

The Power of 10

I am bed-bound at the moment and pretty darn low.  I have written and revised and rehashed a post until is was about 2 sentences long to cut out all of my whining and/or negativity as my body is really kicking the crap out of me.  I’m just going to post this awesome video about Erica.

The Arthritis Foundation has a campaign called the Power of 10.  You watch the video, forward it to 10 people, and give a gift of 10 dollars.  Let’s spread the word.  Just click on the Power of 10 link and check it out.  What a really great simple way we can all make a difference.  God Bless.

Thanks for hanging in there with me,

2michelle

Shout out-

Shout out-

to the LA Lupus Lady for doing her thing, again!  She really inspires me and I am so thankful that she gets out there, tirelessly I might add, and is promoting every event and every chance to raise money and awareness for lupus.  I posted last month about the event that’s still come in November, right here.  Not quite here, and not quite here, but-right-here.  Does anyone get that reference?  Anytime I say ‘right here’ it pops into my head and usually out of my mouth complete with hand gestures, ahhh, I’m a movie geek.

Without further ado, here’s the video and thank you LA Lupus Lady!!!

Blowing up my blog and handbags for Lupus!

Blowing up my blog and handbags for Lupus!

OK, I know nothing about code.  HTML code or any other kind of code.  sigh.  I got on the other day to write a post and I thought I would add this widget from a certain Social Networking site that rhymes with Casebook and blammo.  I lost half of my blog.  I got most of it back but I’m still missing some stuff from my sidebar and I can’t remember what it was, lol.  My brain fog is thick lately.  I’ll work on it later when my caffeine level is higher…

Here’s what I set out to write about-

I met this really cool lady while surfing around on YouTube.  Her name is LaLupusLady and she is making videos to promote awareness for Lupus and the fight for a cure.  I really admire her ‘get it done’ attitude, she is amazing.  Here is one of her videos, it was a fundraising event in May for Lupus.  Get into the loop!

She told me there were a couple of really cool events coming up to raise awareness and funding for lupus.  One of them is a silent auction for designer handbags donated by top designers and a few Hollywood stars!  From LupusLa.org:

With your help, a cure is… in the bag!

On Friday, November 7 Beverly Hills will be overrun with “Bag Ladies”—all rallying for the fight against lupus. More than 500 well-heeled women will gather at the Beverly Wilshire Hotel for the 7th annual Lupus LA Hollywood Bag Ladies Luncheon.

Join us for this highlight of the fall social season—a wonderful afternoon of friendship, fun and fashion, centered around a silent (but very lively!) auction of coveted handbags donated by the top boutiques in the city, as well as directly from the collections and closets of Fendi, Chanel, Hermes, Sharon Stone, Jennifer Aniston and Julia Roberts, to name a few. A runway show will cap off festivities… designers and celebrity models to be announced!

Honoring Dr. La-Doris McClaney
Lupus LA Woman of Achievement Award

This year at the luncheon the Lupus LA Woman of Achievement Award will be presented to Dr. La-Doris McClaney, a motivational speaker, writer and lecturer, and our first African American honoree. La-Doris spearheads her family’s longstanding tradition of charitable giving to a multitude of worthy causes, and when she found out her close friend was battling lupus, she generously lent her name and efforts to our cause. Lupus LA is proud and excited to recognize La-Doris McClaney.

It sounds like fun!  I am so addicted to collecting purses, although mine are more likely to have store brand name tags than designer tags…it’s all good.  I’m a little jealous that I won’t be there (a lot a bit) but if you live in the LA area, check it out.  It’s for a great cause and you could snag a handbag that came straight out of Julia Roberts closet!  I don’t care what anyone says, Pretty Woman is one of my favorite movies 🙂  If you see LALupusLady give her a hug, she is doing an amazing job at raising awareness for Lupus.  Wait, maybe just give her a handshake, we don’t want to scare her with a bunch of people heading for her with their arms wide open, LOL!!   For more info on the events coming up in the Los Angeles area check out LupusLA.org.

OK, now I’m going to try and fix my blog and figure out what the heck it was that I blew off the sidebar…

Til next time

You can find all the info at LUPUSLA.

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