I have dropped off the radar again. Not intentionally; the days just seem to meld into one long day, and I’ve been so sick, time is getting away from me. I haven’t talked to my best friend in at least a month. Again, not intentionally. I’ve written so many ‘I’m sorry’ emails in the past, I just don’t know what to say anymore. I feel extrememly guilty about isolating, but at the same time, I can’t seem to stop. I had a horrible realization a few days ago, and it was-I make it through each day and try and get well enough to make it to my next doctor visit. I actually missed my last one. I couldn’t get out of bed so C went and picked up my prescriptions. This is no way to live, I feel powerless to change it.
Between non-stop flaring and being a momma, I have no time for anything anymore. Facebook, my Christian groups, Flickr, television, nada. For those who aren’t computer-heads it’s not much of a big deal, but the computer has become part of my life since becoming ill. It’s my ticket out into civilization, lol. Continue reading Depressed and optimistic, is that possible?
In the beginning of my illness, I was told that I had lupus. I immediately went home, cried, then read everything I could get my hands on. I was online reading medical journal material, lupus blogs, lab reference sites, everything and anything (except for sites with no reputation, and the ‘cure all’ sites, ugh).
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Here’s a little info from Julian Lennon about Lucy. I really like the song, it’s catchy. Check out the video, it’s an interesting story, and remember you can download the song from iTunes and portions of the proceeds goes equally to The Lupus Foundation of America (LFA) and the St. Thomas Lupus Trust in London.
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This just in, to my inbox anyway!! I am so happy, excited, ecstatic, and all the other gleeful descriptive words!! Not just money for research, but BIG names raising awareness! Weee hooooo!!! Check it out-
Julian Lennon and James Scott Cook Raise Awareness and Funds for Lupus Research
November 24, 2009
Proceeds from the [...]
I stopped by my You Tube account the other day and I’m glad I did. I got a message from Chandra, (theleepchatchannel), telling me about her new campaign for awareness. It’s called LEEP for Lupus ™. I really liked her video that described what lupus was. If you’d never heard of lupus, her video [...]
