I spent this Easter in bed, dozing off and on with the laptop sliding off of my legs every now and then. Not my ideal Easter. The Big C cooked a delicious ham with all the fixins- and I slept. The kids had an egg hunt, and I slept through it. A few of my grandkids got overly boisterous and got time out, I slept through it… lol.
I’m so tired of being sick and tired. And yes, I know that expression is tired, but it’s so freakin true. I haven’t been around much because I’m afraid to just blog about negative stuff, or sound like I’m whining. Each day I think about a post and I end up not doing it either because I am too sick, or too depressed. I refuse to let that get the best of me!! So every once in a while there will be a post with a lot of whining and bitching…no big deal, right?
Here I go… …
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As you can tell, this site is under construction…. Today is the day that I finally go back to my rheumatologist and talk to him about the methotrexate. I can’t tell if it’s doing any good at all as the side effects seem to outweigh any potential benefits. It’s been almost 2 months now and I don’t see any difference in my ‘well being’. The metho actually hurts me and makes my bones feel like they are frozen. Let me know how it affects you. Has it helped you at all? How long did it take?
T minus 1 hour and 45 minutes until the pharmacy opens and I get my refill of pain meds and anti-malarials and cancer medicines. I find that so freakin alarming that my life revolves around pharmacy store hours, and yet, how do I survive without any of these medicines? You notice I say anti-malarials and cancer meds. I don’t have malaria or cancer. No one has found a cure, or even a medication that is specifically for autoimmunity. No new drug has even been on the market for 40 years, I don’t get it. If I decide not to take the meds, well then, my body just attacks the shit out of itself and eventually I die. But while I’m waiting it’s pain city as my cells attacks all of my good cells and it really, really hurts. OK, after the pharmacy opens my posts won’t be so darn melodramatic, lol.
If anyone is out there with some methotrexate experiences, drop me a comment. I’d love to hear about how it affects you.
There are so many really informative videos on Lupus out there that I’ve found and not much on Rheumatoid Arthritis. That’s my new tentative diagnosis. I got my shot of methotrexate today and that always makes me feel so sick and sleepy so I finally got some sleep!!! Yay!!!!! So after I woke up I decided I would link a video about RA here for some info. This is the best one I could find here.
I’m going to do some more searching later to see if I can come up with something more entertaining, woo hoo!!! Let’s have fun with Rheumatoid Arthritis!