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Mish-Mash Friday with a little bit a dis and a little bit a dat

Mish-Mash Friday with a little bit a dis and a little bit a dat

I get the weirdest spam on this blog. There’s tons that are just gobbledy-gook like a cat ran down the keyboard and here in there in the mix are some smut words. Other times there is a paragraph of nonsense. Makes me laugh as I go through them. Here’s one

I’ve been searching for some time for one high-quality content articles with regards to this unique topic . Doing research in Yahoo I lastly encountered this site. After reading this post So i’m glad to pronounce that I get a wonderful impression I came across whatever I was looking for. For certain i will ensure to don’t forget this website and visit consistently.

It reminds me of grade school when the teachers gave you your first ‘real’ writing assignment and it has to be x amount of words. Lookout thesaurus! I’m gonna throw in as many descriptive words as I can get away with for describing the waters George Washington was crossing.  A for effort to the spammer above, although it was probably just computer generated.

Pretty sky shot gone 'wrong' after post-editing..bwaha ha ha ha!
The Heavens

Life is still the same as it’s been all Summer, except now it’s Fall. I’ve been battling depression and trying to fake it ’til I make it.  It a motto Big C and I stand by and I try really hard. But lately, I’ve been mopey.  I had my infusions last week.  My ‘head pain’ came back and my rheumy threatened to pull the plug. I whipped on my shades and then proceeded to cry like a baby in front of all the other infusees.  He said it was too dangerous, chance of me having a stroke. Huh? I sure didn’t read that anywhere. So C and I pretty much begged. The infusion nurses, who btw are saints, suggested I take an oral toradol added to my pre-meds, and then IV toradol at the end of the day.  This being what stopped my head from exploding in the ER the month before. He agreed and put it the order and the next morning I showed up just praying, praying for no pressure that ultimately turns into the head pain. I took my pre-meds, tylenol, benadryl, and toradol along with my regular pain meds and sat back in the chair and prayed.  The infusion nurse chatted as she hooked up my IV and I prayed silently some more. Well, before they hang the bag of immunoglobulins, they hang a bag of solu-medrol as part of my pre-med package. It’s like liquid prednisone (yuck) I feel fatter just thinking about it. Anyway, as soon as the drip started my head started to swell with incredible pressure. It’s the solu-medrol not the IVIG!! I was so happy!! I can continue with the infusions! And that’s when I found out my rheumy decreased my dose this time as a precaution. He told me it’s the least amount he could give me without stepping in to the non-therapeutic range.  Well-it’s been over a week, and I’m not feeling better like I did last time.  I was SO looking forward to that well-floating-in-a-cloud-back-to-healthy-feeling.  It’s not coming and I’ve got the pity party blues.

I’ve got to get into the shower, pull up my bootstraps and fake it ’til I make it. Woot!  Or, I could stay in bed and scrap. That sounds good too. I’ve got tons of new graphics just waiting to be pieced together around my beautiful family.  I’m thinking I’m going to choose the latter. As a matter of face, I already chose =)

Until next time

Picture above: I got that shot on the way to the hospital’s infusion center in a moving car. It came out pretty good considering, but I tossed it into Picnik and did some heavy duty editing with all the goodies they have.  =)

Optimistic and Reconnecting

Optimistic and Reconnecting

the city2

I can honestly say these last few months have been pure torture. Pain, sickness, stress and depression. No exaggeration there.  And yet, I feel optimistic.  Why?  Because God is with me, and the rheumatologist at the teaching hospital ROCKS!!!  I asked him if he’d be mine, and he said yes!  My new rheumy I mean.  Big C approves 🙂  I’ve never had such instant access to a doc before.  In my experience, you call the office and they have a system of blockers.  The front desk, then the assistant.  You don’t get to speak to the doc him/or herself unless you make an appointment.  I might get some flack for that, but I was an assistant and we were taught that in school.  It is your job to keep the patients away from the doc so he can get through his day.  And I mean patients calling in, not the ones in the office, lol.  Docs are busy and they always have a full schedule.  So medical assistants are crazy-busy and work especially hard.  Next time you go to the docs, let them know you appreciate them. They do all the behind the scenes work that no one sees.  Stepping down from the soapbox.  Anyway-the hospital has an e-chart system.  I always said I would never want my medical info online and now I love e-chart.  You can see all of your test results as soon as they come in, you can email your doc with any questions, and mine gets back to me THE SAME DAY!  Wee hoooo!  OK, it’s been a while since I’ve been here so I need to get my thoughts together and pick up where I left off.

New Doc told us to email him as soon as my rash came back.  On our previous visit, I brought pictures of my hand rash, knuckle-red-scaly-yuck, chest rash and my legs when they turn all pink/red.  He already told us that it’s really hard to diagnose retroactively.  After seeing the pics you could see the wheels turning.  He told us that there are two paths to take with treatment; IVIG therapy if it’s dermatomyositis or ‘the next step’ if it’s RA, Still’s.  He said since I’ve already tried and failed with methotrexate and Imuran, it’s the next step.  I didn’t ask which med for the RA, I was overwhelmed with his efficiency.  I found out that when my muscle symptoms and rashes first started I could have had a muscle biopsy to find myositis.  Now, he says, I have plaquenil and prednisone in me for 3 years it would mask the results.  So I’m scheduled for an MRI of my femur.  That should show disease.  I’ve gotten set up with an ophthalmologist because of the double vision that I have.  Turns out the yearly and baseline eye exams that I read about when I started plaquenil really ARE needed.  My (old) rheumy said I didn’t need them, that the percentage of eye issues was so low. sigh.  So I’m getting checked for toxicity in my eyeballs.  I’ve got an appt. with the Derm to biopsy my rash, a bone density scan, and a neuro appt to rule out Myasthenia Gravis.  I’ve only lost my legs a couple of times and fallen down the stairs but he wants to rule it out.  I feel like I struck gold in the healthcare hills.  Bout time and I deserve it!

The hospital has a tram that takes patients from the top of the hill to the bottom.  And vice-versa.  It reminds me of the ride at Great America that takes you from one end of the park to the other.  Boring, but you take it anyway.  It was a beautiful day so I asked C to pull off at the vista spot so I could get some shots of it.  So we got out and I started snapping away with my soon-to-be-broken camera. yes, broken. and this was my point and shoot.  my Nikon D60 is laying in it’s bag, broken too…

weeeeeee
weeeeeee

I noticed when I was resizing this that there is a person on board and it looks like he/she is looking at me.  It looks kind of ghostly actually, spoooooookyyyyyy.


through the treees

This next shot is one of the tram but with many, many trees in the way.  Even though it goes along that wire pretty slow, I was panicked that I wouldn’t get a shot. So I kept my eye on the viewfinder while screaming over to C “where’s it at? Is it coming yet? Argghh, all I can see are trees!!!”  Good times.

Everything in our backyard is either blooming, budding or just screaming to be photographed.  It’s been driving me nuts so I’ve channeled that creative energy into editing my old photos.  I have a couple thousand on this computer but it only goes back a few years.  I have every great pic of my kids when they were younger sitting in a dead desktop comp on my closet floor.  But-I was visiting my dad a few days back and in his iPhoto are shots from the 90’s!!!  I almost started screaming, my kids! my kids!  Instead I said in a high-pitched squeal ‘Can I burn all of these on to disk?!?!’  He didn’t have his hearing aids in and I startled him, lol.

Alright, my eyes are blurring.  I’m on the 3rd day of a migraine.  This is a first for me.  I’ve had a weird head pain that lasted for months, but this is a true blue migraine.  I’m sitting here typing in my J-Lo pink glasses…Yah, I think it’s time to buy a new pair.  I’m coming back tomorrow.  I need to keep writing or I’m just going to isolate again, and I just can’t have that.

Until next time,

2michelle


Docs playin peek-a-boo with diagnoses

Docs playin peek-a-boo with diagnoses

I have some good news-(drumroll please) I finally got Medicare ( woo hoo!!!!)!!!  I went 3 years with no insurance after I lost my job.  The amount of money I owe for medical bills is astronomical.  I think I can safely say that my credit isn’t credible anymore. No one will be giving me any loans in this lifetime, ha!  Good thing I have The Big C.  I told him if he tries to leave me I’m grabbing on to his ankles and he’ll have to try and run with me holding on.

Anyway, back to the Medicare.  My primary care doc has given me a referral to be seen at the big state teaching hospital.  Yeeeee hoooooooo!!!!!  I finally have some kind of coverage that gets me in the door.  I am so happy.  For the past 3 1/2  years I’ve had doctors scratching their collective academic heads and going hmmm.  Then I get a diagnosis, and I get it taken away.  Peek-a-boo! It’s here and then it’s gone…  The only one that hasn’t been taken away is the small fiber neuropathy.  That’s because I had a biopsy and they could actually see it and diagnose it.  It sucks that so many autoimmune diseases don’t have one clear test.  It’s more of a symptom game and then you have to have a rheumatologist who’s willing to put their neck out and actually diagnose you before the average 6 to 11 year time-frame.  As soon as I told my rheumy that I was going to be seen at the teaching hospital, he backpedaled on the Still’s and dermatomyositis.  Even though I have the rashes and skin issues that go hand in hand with each and solid bloodwork.  I just can’t wait to be seen at this hospital, I’ve been too sick for too long.  I’m going to be seen in the rheumatology clinic but was assured that they would take a team approach on me and try and figure out what’s causing my Cushing’s and chronic edema before I explode.  It wouldn’t be pretty that’s for sure.  I am flaring with my RA right now ( I mean UCTD again) so I’m in a lot of pain in all of my joints and it makes it worse from my hips down because of all of the water pushing the bones in my feet apart and the pressure in my knees.  As me and C would say, Oy! My pancreas! It’s what we say when we realize that either one of us is going on and on and on about body parts.  It means, shut up, you sound like one of those  people that like to tell you all about all of their aches and pains when you say hello.  If you could feel your pancreas hurting, your pretty much hurting everywhere.

Change of subject: Here’s kind of a happy thing, for me anyway-  I finally got Photoshop elements 8!!!!  I am a digi scrappin fool I tell ya!!! I also got a few new kits from a wonderful designer and friend.  And, I bought My Memories Suite. Yeah!!!  That’s where I’ve been spending my free time lately.  I am hooked. I could spend days just cruisin the online shops for kits, actions, or just elements.  But-I don’t have much free time, or not as much as I would like that is.

The other day I was searching for the video camera.  Our house is a little ‘cluttered’ now that I’m on a break from housework, ha!  I was going through stacks of stuff in the corners of our family room and I found my bag of knitting.  I just stared at it and was like, oh wow.  When is the last time I’ve seen that bag and how did I ever have the time to knit??  I remember sitting on the loveseat upstairs at night and going through new patterns.  What life was this in?  I swear there aren’t enough hours in the day now.  And I’m home all day so I don’t get it.  It seems like I had more time when I was working full-time, but how can that be?  Maybe it’s like money.  The more you make the more you spend.  The more time you have the more you need.  I don’t know but I felt a little sad just thinking about it.

I’m off to check on some websites and figure out which ones I’m going to drop.  I have way too many social media sites and I’m thoroughly addicted to those too so this is going to be hard.  I know for sure I’m keeping my Christian women sites, all of my photography sites, and facebook.  The rest is going to be hard to choose.  I’m leaving you with a few shots from this time last year.  Right now we are having a cold spell (12 degrees at night brrr) and at this time last year we had this freak snow-then-ice storm that left us without power, freezing, and me taking a million shots of the ice.  Enjoy and until next time

2michelle

Reaching
Reaching
Ice on Top
Ice on Top
Stuck in the Middle
Stuck in the Middle

no copy or use of photos allowed without express written consent from genius, uh I mean blog author  🙂

Sunrise? Sunset…

Sunrise? Sunset…

OK. Last night we had the most magnificent lightning storm that I have ever seen. We sat outside and watched the sky light up to the left, right, in front of, and behind our house. It was so crazy, we were in the very middle of the storm. Of course I was freaking out asking the Big C what the chances were that we would get hit standing out in the backyard going ooooh and aaahhhh. He’s from back east so that automatically qualifies him as an expert on the subject. He was counting the seconds between thunder claps and telling me how many miles away it was and doing math while I worried about our computers, generic viagra online, the fans that were on around the baby and was it true that you couldn’t talk on the phone, and did that guy that worked at the fast food restaurant really get hit in the headset by lighting while he was passing an order out the window to a car in the drive-through lane. I was too scared to turn on the computer and look it up on snopes.

Well, the past few mornings I have been up at the crack of dawn, literally, and the sunrises have been magnificent. So last night I decided to dig out my tri-pod that I found on sale for $14.99 (cheap!!!) and set it up to get a shot of this morning’s sunrise. I figured with the freakishly weird weather, it would be a really good shot. I fiddled with all the knobs and levers and could not wait until the sun rose this morning. I overslept the sunrise by like 15 MINUTES. I have seen the sun rise just about every day this week and they have been absolutely beautiful from the vantage point of my backyard. Picture perfect… So, of course after charging up the batteries for my old Nikkon and figuring out my new tripod, I would sleep through it! erggg… The shot you see above is a sunset taken from my backyard a little while back. It’s pretty too.

I’m going back to sleep.

Pink Hearts

Pink Hearts

Here it is, finally!  Aren’t they beautiful?  I just think that it’s so cool that there are flowers shaped like hearts.  But then again, I’m easily impressed.  Just about everything is in bloom, I’ve gotta get out there today and get some shots.

Enjoy!

I won, I won!

I won, I won!

The other night I gathered up all of our bills and stacks of junk mail. I always say I’m going to go through the mail each day and toss out all the junk so I don’t have a mondo pile to go through all at once, but I never do. So, I’m going through the giant pile and I see an envelope addressed to me that looks like junk. I open it and I see a photo that I took a while back along with a bunch of forms. Confusion sets in. So I read on and the letter states that I entered a photo contest and mine was chosen to go into the book that they are making. Slowly I remember entering this contest months ago and waffling between two photos, unsure of which one I liked better.

Here’s what they had to say to me “Michelle, your photograph was selected for publication because of it’s unique perspective and your artistic vision”. Wee hooo!!!

I realize that this is a form letter sent to each person who was chosen to be in the book, but I don’t care. Unique perspective and artistic vision…ahhh. OK, I’m done being humble. 🙂 The thing is, since I am so lazy when it comes to going through the mail, the date on it was early January. And it said if I wanted to be included in the book and be published to sign and send back immediately. Oh well, we’ll see if it makes it there before press time.

Here’s the shot

snail

The Long Trek Up Copyright By Arimayasheart.com

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