I have been pretty quiet I know, it’s been a weird and kinda crazy summer. I finally got my diagnosis (dermatomyositis), got my first treatment; landed in the ER a couple of days later with WORST SIDE EFFECT EVER, then went on to have a series of strange days.
I woke up in the mornings and didn’t have glass feet! Soon, I was walking without my cane! (this is huge as I’ve been attached to that dang cane for a while now) All of those little cells from 1,000 healthy people were coursing through my veins waving there little cowboy hats and yellin Yeee Haaaawww! and I’m gonna git you sucka! to all of my Good Cells Gone Bad. And they were winning! I had days where I felt great. I could load and unload the dishwasher and not be bed-bound for 2 days after. This was actually the case before the IVIG.
So- here’s where I’m the lame-o. After going in to the ER in the back of an ambulance, I freaked out that I wouldn’t be able to have another treatment. I scheduled an appointment to visit my rheumatologist at the hospital but failed to schedule myself the next round of IVIG. So, when I meet up with the doc, he tells me no, I can get more treatments-they can pre-medicate to try and prevent the headache of the century and all the vomiting and oh, by the way, when do you go back? I’m sitting in the chair in his office going
, uhhhh. Gee, I didn’t schedule an appointment… So he goes down the hall and brings one of the infusion nurses into the room and tells her to squeeze me in. Try as she might, it’s a no can do. Their chairs are booked solid. So, I”m having my next treatment on the 21st, and oh man. I definitely have no stampede of little warrior cells going on now. Probably just one little lone ranger and that’s why I’m having a few good hours here and there. Other than that, I am in full flare mode again. Rash, muscles constricted to the point of PAIN and so many weird little things that go with the package. I had to talk myself down from an anxiety attack this morning. I felt like I was going to stroke-out with the icepick that was pushing through my skull. So, yeah. There’s my illness in a nutshell for the summer. I left a lot out because it’s BORING and blah blah blah.
OK, now for some good stuff. We got a new puppy!!! His name is Brutus and he is the most awesome little dude ever. I say little dude, because if our pets could talk he would totally have a surfer thing going on man, catch a wave dude, awesome, tubular even. And he would talk real s-l-o-w. Yep, that would be Brut Bruteman. That’s what I call him because obviously I have problems. But it suits him. I call our other dog Pete, Pete Peteman so it was a natural progression. I guess. Wanna see some pictures? No? Alrighty then, here we go! (like when someone comes over right after you’ve been on vacation and you make them look at all 350 shots of random buildings and trees in a town they’ve never been and could care less about, fun!!) OK, NOW here we goooo!!!
The Bean decided she wanted to hold the bowl while Brutus ate some. It was hard to say no…
Look at those eyes! He is going to be one spoiled doggy, for sure. It’s hard to deny a face like that.
This is the infamous Pete Peteman. He rocks. And he keeps the deck held down at all times.
Alright, I’m off to bed. Today sucked in terms of pain and icky feeling, I’m hoping tomorrow is a better day.
Until next time